FND patient response when asked what triggered the onset of your symptoms.
The FND Guide
Dr. Edwards explains his theory why patients have functional symptoms.
The brain has an internal model of the world. -Dr. Mark Edwards
What’s in a label?
There is a great deal of confusion surrounding the many diagnostic terms used for the same set of functional symtposm. One doctor may use the term Functional Neurological Disorder or Functional Movement Disorder, but then another may use Conversion Disorder or Dissociative Disorder. This leaves many patients perplexed about their diagnosis and struggling to find where they fit in. These labels individually mean different things, however, they are all labels for the same set of symptoms.
Our preference as an organization is the term Functional Neurological Disorder (FND). FND is also becoming the preferred term amongst specialists as the term is more neutral about the cause and mechanism of the disorder. The term FND is slowly making its way into general neurology clinics. Conversion Disorder is a term often more relatable to those patients who can clearly define a psychological trauma, which they are “converting” to their physical symptom. Because many patients do not have an identifiable psychological trauma, the Conversion Disorder label is not a one size fits all.
As an organisation we advocate for all patients with functional symptoms regardless of what diagnostic code they were given or why they are symptomatic.
Diagnosis
The FND diagnosis should be made from positive signs not negative test results.
Do I have FND?
This is the most difficult of the issues raised to address, because as you can imagine, FND cannot be diagnosed without physically seeing, talking to and examining a person, and sometimes also having access to specific test…continue reading
Why did this happen to me?
This is a big and complicated question. I think to start with it is important to address the issue of psychological factors. Many of you will be aware of the term “conversion disorder”, which is one of the many…continue reading
Can I get better?
The short answer is yes. We know from our current understanding of how the brain malfunctions in FND that the basic structure of the brain is normal. This is a good start, as it means that recovery is in theory possible…continue reading
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