FND Hope US
UNITED STATES OF AMERICA
September 18, 2019, FND Hope delegates Sara and Alana joined others from across the nation to Rally for Medical Research. Both advocated for FND on Capitol Hill.
Sara on behalf of all FND Warriors shows her pledge for research and helping others become #FNDaware.
September 19, 2019, kicked off the first in-person patient meeting at the Cleveland Clinic. Approximately 20 patients and family members gathered to talk FND. Cleveland patients were the first to receive the new FND Patient Booklet. Great discussions were had and new friendships emerged. The event was a great way for individuals with FND, their families and medical professionals to support one another.
September 19, 2019, FND Hope International ‘s CEO/ Founder Bridget Mildon spoke to attendees highlighting how perspectives of FND have influenced how others approach the illness and those with the diagnosis. Mildon shared the lived experiences of several patients and their barriers to care. Mildon continued to emphasize how changing perspective could potentially improve patient care.