FND is a relatively unknown condition – but I have two friends who have been diagnosed with FND.
Poppy was and is a “go get it” kind of person, but in 2019 she was admitted to hospital when she lost sensation in her legs and was no longer able to walk or even control her lower limbs. She was diagnosed in a relatively short space of time with FND and was discharged. After 4 months of regular physio and she was able to get around, but relied heavily on a zimmer, had to adapt to working from home well before the rest of us and was not able to do a number of activities she previously had.
FND Hope UK provided the support and information for a trial of intense physio which has got Poppy to where she is now – walking, talking and back to her previous self. Without FND Hope UK, who knows where she would be in her journey.
Georgia was a member of my kayaking training group at Longridge Canoe Club, she trained six days a week and was competing at international level. For Georgia, her story is slightly different, after not one but two knocks to the head and multiple hospital trips, she was diagnosed with FND.
Eventually it was determined that Georgia had been misdiagnosed – in part due to little being known about FND and it being hard to diagnose, but FND Hope UK have been there for Georgia and her family the whole time.
I have seen what FND Hope UK has given Poppy, Georgia and others and would like to support them in the good that they do.
However, due to little being known about FND.
Georgia was a member of my kayaking training group at Longridge Canoe Club, she trained six days a week and was competing at international level. But after a knock on the head it all changed – Georgia became unable to walk, suffered headaches and couldn’t go to school. She fought back, having regular physio and working hard to get back to where she was.
After Georgia’s first recovery, she received second knock to the head, and this time the consequences were much worse and the battle ahead of Georgia was far bigger. At the point where her symptoms were worse, she could not walk, talk, feed or support herself. Georgia spent nearly a year in either hospital or a rehabilitation centre trying to relearn the daily life skills that most people take for granted.
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